You Smell

Today I had an initial IEP meeting for Hezekiah. I knew that him being enrolled in a charter school was going to change things, I just not know it was going to be so hard. That hard part has been him transitioning. He is overstimulated and overwhelmed. The program director of the enrichment site is having a hard time with him, and frankly does not seem to be understanding. He is not attending one of the days he is supposed to be because of that. He really isn't even aware he is not wanted there.

The other kids seem to be doing okay. Joaquin is often frustrated with feeling like the site director is answering questions for him. Oh, the life of someone with Autism. I hope that gets worked out soon.

The stress and anxiety of all this is very frustrating. I have thought about throwing in the towel and going back to a private school affidavit. You know hour to two hour commutes to therapy sessions. Running out of food because traffic is bad, and loads of gas money. But, then there is comfort of low stress and virtually no anxiety. It would just be another sudden change in our life.

Right now I just want some blankets, my tv and nachos. I guess I can settle for something else to eat. Time to quiet the mind and the worry.

Love
Momma

Special Needs Update

You know, I've been reading a lot about the ups and downs if parenting special nerds kids. So I will share about my two boys and what new with them.

Hezzie and Joaquin are currently in occupational therapy. We are waiting for openings so they can go twice a week. Hezekiah starts speech therapy twice a week next week. Joaquin is waiting on his physical therapy approval. He will be doing that twice a week. His speech therapy evaluation is in the next few weeks.

Joaquin is either pulling hair out it it's falling out. He has a male first cousin with alooacia who's hair looked similar when it first onset. I'll be calling his pediatrician on Friday.

Hezzie got his MRI results back. There's a small cyst with fluid showing. Nuerology appointment is in the next few weeks. Also, his audiology appointment.

Maggie goes to  genetics next week. 

Oh, What a Wednesday!

Took Maggie to breakfast with Jimmy. We had gotten together to take her to therapy. Her therapist ended up being out of state due to a family death. We took her to Gus, Jr for a fatty big breakfast. We are trying to co-parent well,

One thing our kids are fond of doing is going about town in their pajamas. As you can see in the picture above, even to a therapy appointment and breakfast. My Maggie is such a sweet girl. She loves her daddy and misses him. He calls her every night after he is done with his day.

I went to the Social Security office to get some things started for Joaquin and Hezzie. This my friends is an ad I saw. It really cracks me up. Got to say TOS never gets old.


Live Long and Prosper,
Momma and her Tribe