Of Seizures and Brothers

I have been avoiding blogging lately as to not complain. You know, sometimes life throws us curve balls. The van has been in the shop for longer than needed, my iPhone will not restore. Just things, things that are not life ending just frustrating.

Joaquin has been staying up WAY too late, even with melatonin. He says he has been worried he is going to get sick. "Mom, I always get sick in August. It ruins my birthday. It's just bad luck." Strange thing is, none of us recall this bad luck. However, Joaquin has been known to tolerate sickness and pain for long periods of time without telling us. I have to say, it's probably his Autism.

Last night he was up pretty late and fell asleep on the living room floor. Around 1:20 am he sort of sat up and was seizing. He came out of it foaming and spitting. I ended up being awake for some time after that. He fell back to sleep and until this afternoon was pretty tired. He will be seeing his neurologist again pretty soon. Joaquin will also be having his MRI and EEG soon.

Joaquin has a MRI not too long ago. The neurologist from Loma Linda called me today. Hezzie has a cyst on his right temporal lobe. From what he says, it's pretty sizable and putting pressure on his brain. The doctor will be referring him to pediatric neurosurgery. He has an EEG soon and hopefully that will tell us more. I have to say the neurologist they both see is pretty amazing.

When I got this news, I was not anxious. I was not worried and still will not. I know in the end, worry for me...it's like picking an infected wound. It makes things worse and nothing gets accomplished. Also, it's not about me as mom, it's about him (them). It's about making sure they have a life outside of my own expectations. I love my boys.

Love

Momma

Saturday

It was a nice peaceful Saturday! Morning meeting was a nice book study. We had a nice day overall. We are getting into a better rhythm, so much so...there has been no arguing between us and we are communicating quite well.
Jimmy's psychiatrist put him out of work until March 9th. We shall see if this leads to a new beginning in more than one way. In my heart I know it is. There is so much ahead of us and a day at a time we will live much happier lives. A life of peace, grace and acceptance.
We made a nice park trip yesterday and everyone but, momma hill rolled. That was so fun to watch.
We don't have a whole lot but, we have more than enough.

Love,
Momma and her tribe

DOCTORS!!!!!!!!!

Yesterday was filled with so many doctors appointments, or so it seemed. Maggie went to see her psychiatrist. That went well,s he was awake this time and even talked to him. This was a big step for her. She is adjusting well to her medications, I have to say we are blessed she didn't have to switch them so much.
She is so fun loving and energetic now. She is much more happy and full of life. So glad these steps were taken.

Jimmy and I had appointments. This is us waiting. So glad he came along....I am not fond of pap smears and have been known to get anxious. I know I am 35 and I still need my hand help, and possibly a lollypop
.

Can you see how scared I was? For good reason, that lady poked at my rectum without my permission. How dare she? Is this something new? It's only been five years since my last one.

We had a good laugh after it was all said and done. Now we have the daunting task of fasting bloodwork.
How was your Thursday?

Love
Momma and her tribe